FIRST – Foundation for Ichthyosis & Related Skin Types www.firstskinfoundation.org
FIRST is a vibrant, growing foundation connected to its members and families by the special skin and unique management needs of individuals and families with ichthyosis and related skin types.
ISG – Ichthyosis Support Group – www.ichthyosis.org.uk
The ISG is committed to the ongoing provision of an information network and support structure for sufferers and families affected by ichthyosis. Associated with that we need to create a greater awareness and understanding within the medical profession, and lobby for greater research into this distressing condition