Helping to make a difference
Thank you all for a great 2013
Dear friends, As 2013 draws to a close, we want to say thank you for your incredible support over the last 12 months. Once again we have been blown away by your fundraising efforts. So many of you have contributed that we don’t want to single anyone out, but your collective generosity, energy and creativity […]MORE
Earlybird offer – half price places in the Brighton Marathon with SHHiRT!
Places are now available in the SHHiRT Squad for the Brighton Marathon on 6 April 2014 – and if you hurry, you can get your place half price! Places normally cost £50, but to encourage you to start your training early, we’re offering them at just £25 until Monday 4 November! What’s more, we only […]MORE
Date for your diary
With the autumn colours just starting to come through, it seems too early to start thinking about Christmas – however, time flies when you’re having fun and it won’t be long before the mince pies hit the shelves, Cliff hits the airwaves, and we hit the dancefloor. We know how busy everyone’s diary gets in […]MORE
Adam and Roland take on the Royal Parks
Good luck to our trustees Adam Hardgrave and Roland Burton at this weekend’s Royal Parks Half Marathon. Adam is taking part in his first race at this distance, while Roland is hoping to improve on last year’s time of 1 hour 38 mins. It promises to be a beautiful autumn day, and supporters are very […]MORE
We’ve recently become aware that photos of Sam are being used by other sites on Facebook without our permission. We are in contact with Facebook in an effort to get them removed. Thank you to those of you who have brought it to our attention.MORE
Our 3rd anniversary golf day is the biggest yet!
Over 100 golfers joined us at Silvermere golf course last week to mark the 3rd anniversary of SHHiRT. The day may have started with thunder and showers, but it didn’t dampen the spirits of our golfers, or our special celebrity guests. The likes of international footie legends Glenn Hoddle, Ossie Ardiles, Luther Blissett and Tony […]MORE
Recycle & Raise!
Following the success of our first forays into the wide world of recycling we are happy to announce the addition of a few more types of items we can recycle for you whilst raising funds for SHHiRT. Used & Unused Postage Stamps – we can now recycle all used and unused postage stamps. Rare and […]MORE
Good luck to our triathletes!
The London Triathlon takes place on 27/28 July, and SHHiRT has a 10-strong team of athletes lined up to take part. A huge thank you and good luck to Steve Clancey, Leanne Charles, Kirsty Mundy, Laura Green, Clive Rowland, Jo Beegan, Ross Buchanan, Charles “Saf” Safapour, Kate Harbottle-Joyce, and Carolyne Cleghorn. You are SHHiRT superstars! […]MORE
Boys will be boys, and girls will be girls…
It was a case of “boys will be boys” last weekend, as the chaps from the SHHiRT trustee group took part in Tough Mudder – a 12 mile romp through obstacles, water, and of course, mud! Led by our intrepid leader Jamie Hardgrave, the boys (trustees Matt and Tom Bidwell, Adam Hardgrave, together with Dave […]MORE
History in the making
Fantastic news from America, where the first-ever baby born to a Harlequin Ichthyosis sufferer has been delivered healthily and happily. Stephanie Turner from Arkansas was born with Harlequin, just like Sam, but survived to adulthood. Now 20 years old, she and husband Curtis have given birth to baby William – making history in the process. […]MORE