Sunday, May 29, 2016

Our goals to change the lives of those touched by Harlequins Ichthyosis:

1

Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.

2

Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.

3

Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.

 

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May is Ichthyosis Awareness Month, and over the coming month we’ll be sharing some posts and stories on our Facebook page to raise awareness. Please get involved by sharing these on, using the hashtag #IchthyosisAwarenessMonth! SHHiRT specialises in Harlequin Ichthyosis, one of the rarest skin conditions; we are therefore very proud to support this wider campaign by our friends […]

May 5, 2016

 

Unfortunately it seems we are one of the organisations who’ve fallen victim to a recent phishing scam, as reported by the media. We know that many individuals have received emails claiming to be from SHHiRT, requesting money. We greatly sympathise with anyone who has received such an email – please be assured it is nothing to […]

April 4, 2016

 

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Our Clapham Common Challenge was a huge success, with over 300 runners taking part, not to mention countless more supporters, sponsors, organisers and more. Here’s a quick reminder of a great day!

September 17, 2015

 

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A huge congratulations and thank you to everyone who took part in the SHHiRT Clapham Common Challenge. Over 300 runners took part across the 10k, 5k and 2k kids races – an incredible turnout, and a proud moment for everyone associated with SHHiRT. A very special thanks go to the people who helped make the event happen […]

September 13, 2015

 

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Online places are now closed for the Clapham Common challenge. However, you can enter on the day – please arrive just before 8.45am to get your place. If you’re already signed up, congratulations. Full details of the race are available here. Timing 08:45 Registration Open 09:30 Kids Race 10:00 10k & 5k Race Commences The Course 10k […]

August 19, 2015

 

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