Saturday, April 18, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:

1

Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.

2

Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.

3

Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.

 

Runners

Best of luck to our fantastic Brighton marathon runners, Scott Rowson (left) and Brian Kerr! The boys are taking on the 26.2 miles around the south coast this Sunday in aid of SHHiRT – and we’re hugely grateful for their efforts. We will be there to cheer them on every step of the way (not […]

April 10, 2015

 

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Here’s our latest update from around SHHiRT – featuring our annual quiz, last call for the Brighton marathon, a fashion show and a special birthday. Enjoy! Let’s get quizzical! It’s the ever-popular SHHiRT Quiz on Saturday 7th March at Purley Bury Tennis Club – and we want you there. It costs a bargain £10 a ticket, […]

February 9, 2015