Research into cause & prevention
To raise funds to research into the cause & prevention of Harlequin Ichthyosis, by donating to and supporting associated organisations.
Providing support to those affected
Help provide support to the friends and family of those affected by Harlequin Ichthyosis, giving access to information and resources
Raise awareness & inform the public
To raise awareness of Harlequin Ichthyosis to the wider public, providing information on the effects and impact of the disease
Virgin Active London Triathlon 2012 Standard entry into the 2012 Virgin Active London Triathlon has now closed. However, for the first time SHHiRT has secured 10 places to the World’s largest triathlon, so if you are up for the challenge of 1500m Swim, 40km Bike, and 10km Run, and want to join the “SHHiRT Squad” please [...]
All at SHHiRT would like to thank Richard Kirwan who ran the London Marathon on Sunday in a fantastic time of 3hrs 54mins and who raised an incredible amount of money which at last count was over £1,400!!! Hopefully your legs are now back to normal!! Big thanks also to your family and friends that [...]
It’s that time of year again where you dust off the clubs, get your irons buffed and your plus fours ironed, for the Pro-Am golfing spectacular of 2012 in aid of SHHiRT’s 2nd anniversary! Following the huge success of SHHiRTs first golf day in 2011, which saw Tony Gale, Ray Wilkins, Tony Cottee and many [...]
Sunday saw our amazing runners set out on the gruelling 26.2 mile course around the coastline of Brighton. It was very windy but dry and sunny. Just after 9am our runners set off with Dan, Bez, Burtie, Ian, Jhan & Ben all charging forward and Jamie with a more controlled start due to the rather [...]
Following the massive success of last year’s Golf day, the team has started preparation for this years and we ask you all to get the date in the diary so you don’t miss out!! The event will take place on Thursday 23rd August at Silvermere, our fabulous hosts last year. As last year we are [...]
