Sunday, January 25, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:


Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.


Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.


Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.



When we formed SHHiRT in 2010, our first goal was to keep Sam’s name and memory alive. None of us had any experience of working for a charity, let alone starting one from scratch, and so it was a journey into the unknown. We’ve received incredible support and encouragement from the hundreds of people who […]

December 19, 2014


Jane Chantrill Burns ran London for SHHiRT in 2014 - will it be you?

Didn’t get a place in the London Marathon ballot? Fear not – you could still take part in the world’s most iconic race, by raising money for SHHiRT. Charity places are hard to come by; ballot places even more so, but SHHiRT has a place available for one lucky participant. Not only that, but we […]

October 6, 2014



Massive congratulations to our CCM cyclists who successfully completed their intrepid journey from London to Paris at the weekend. The team, made up of Sam Taylor-Allkins; Tim Bretman; Andy Clarke; Steve Ramsay; Mike Newlands and Ben Speariett, rode through the night to reach the French capital within 24 hours of leaving Blighty. We are waiting for confirmation of reports that during the final difficult hours, they were fuelled solely by croissants, […]

September 15, 2014


Heading from London to Paris sounds like just the sort of holiday we fancy – kicking back on the Eurostar, sipping Champagne, nibbling canapés. However, Sam Taylor-Allkins and his colleagues at City Change Management are taking a far less relaxing route– they’ll be using pedal power as they bid to reach the French capital by […]

September 8, 2014


We at SHHiRT have just celebrated our 4th anniversary, and we are very proud of what we’ve achieved. This is even more so, given that all of our Trustees are volunteers, who manage to juggle work, family, and day-to-day life with SHHiRT. In the last few months, two of our team, brothers Matt and Tom […]

September 8, 2014