Research into cause & prevention
To raise funds to research into the cause & prevention of Harlequin Ichthyosis, by donating to and supporting associated organisations.
Providing support to those affected
Help provide support to the friends and family of those affected by Harlequin Ichthyosis, giving access to information and resources
Raise awareness & inform the public
To raise awareness of Harlequin Ichthyosis to the wider public, providing information on the effects and impact of the disease
It was a case of “boys will be boys” last weekend, as the chaps from the SHHiRT trustee group took part in Tough Mudder – a 12 mile romp through obstacles, water, and of course, mud! Led by our intrepid leader Jamie Hardgrave, the boys (trustees Matt and Tom Bidwell, Adam Hardgrave, together with Dave [...]
Fantastic news from America, where the first-ever baby born to a Harlequin Ichthyosis sufferer has been delivered healthily and happily. Stephanie Turner from Arkansas was born with Harlequin, just like Sam, but survived to adulthood. Now 20 years old, she and husband Curtis have given birth to baby William – making history in the process. [...]
Our short film aired last night on the Community Channel. It tells the story of SHHiRT, from Sam’s birth, to the determination Jamie and Clare showed to set up the charity, to the lengths some of our fab fundraisers have gone to. It’s also a way of saying a huge thanks to YOU – our [...]
Continuing the amazing success of SHHiRT’s previous golf days, we are excited to announce the details for our 2013 event – which promises to be bigger, better and more celebrity packed than ever before. Last year the event saw the likes of Harry Redknapp, Ray Wilkins, Tony Cottee and Dave Beasant joining us for a day of entertainment, and we’re [...]
A massive thank you to the 25 lovely ladies from Carshalton who look part in last weekend’s 3-hour Zumbathon. The girls put on their best moves to work up a gentle glow for SHHiRT – and although they’ve now made themselves immaculate again, their warm inner glow will remain considerably longer, having raised well over [...]
