Research into cause & prevention
To raise funds to research into the cause & prevention of Harlequin Ichthyosis, by donating to and supporting associated organisations.
Providing support to those affected
Help provide support to the friends and family of those affected by Harlequin Ichthyosis, giving access to information and resources
Raise awareness & inform the public
To raise awareness of Harlequin Ichthyosis to the wider public, providing information on the effects and impact of the disease
Make sure you tune in for SHHiRT’s television debut next week – as we share our story with a nationwide audience. A short film about SHHiRT will be broadcast on the Community Channel on 29 May at 8pm as part of the Untold Stories series, hosted by BBC London’s Alice Bhandhukravi. SHHiRT is one of [...]
Continuing the amazing success of SHHiRT’s previous golf days, we are excited to announce the details for our 2013 event – which promises to be bigger, better and more celebrity packed than ever before. Last year the event saw the likes of Harry Redknapp, Ray Wilkins, Tony Cottee and Dave Beasant joining us for a day of entertainment, and we’re [...]
A massive thank you to the 25 lovely ladies from Carshalton who look part in last weekend’s 3-hour Zumbathon. The girls put on their best moves to work up a gentle glow for SHHiRT – and although they’ve now made themselves immaculate again, their warm inner glow will remain considerably longer, having raised well over [...]
Energetic Gemma Walsh is showing her support for SHHiRT this weekend – with a three-hour Zumba-thon! Gemma, who teaches Zumba in Carshalton, will be dancing for three hours non-stop on Saturday 11 May, from 10am – 1pm to raise money for SHHiRT. If you fancy getting fit and healthy, having loads of fun, and working [...]
Congratulations to our heroic SHHiRT runners, who triumphed in Sunday’s Brighton Marathon. The five-strong SHHiRT squad flew the flag in difficult warm conditions, which made the 26.2 miles especially challenging. Kate Walker in her first ever marathon, was the star turn as she smashed all expectations, finishing in a staggering 3.38. Meanwhile, our other runners did [...]
