Monday, November 30, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:


Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.


Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.


Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.



Our Clapham Common Challenge was a huge success, with over 300 runners taking part, not to mention countless more supporters, sponsors, organisers and more. Here’s a quick reminder of a great day!

September 17, 2015



A huge congratulations and thank you to everyone who took part in the SHHiRT Clapham Common Challenge. Over 300 runners took part across the 10k, 5k and 2k kids races – an incredible turnout, and a proud moment for everyone associated with SHHiRT. A very special thanks go to the people who helped make the event happen […]

September 13, 2015



Online places are now closed for the Clapham Common challenge. However, you can enter on the day – please arrive just before 8.45am to get your place. If you’re already signed up, congratulations. Full details of the race are available here. Timing 08:45 Registration Open 09:30 Kids Race 10:00 10k & 5k Race Commences The Course 10k […]

August 19, 2015


We’ve had a great response to our SHHiRT Challenge, with runners of all abilities and ages signing up to take part. If you’ve been thinking of signing up, don’t leave it until the last minute! Book your place now to be sure of taking part, strike it off your to-do list, and start your training!

July 17, 2015


Screen Shot 2015-07-17 at 06.59.00

…but you’ll like it! Friends of SHHiRT, KillQuick Collective, are playing a rare and exclusive live gig at Scream Lounge, Croydon on Saturday 19th September evening. Playing a hedonistic blend of eclectic genres, they provide a unique sensory experience. The band features SHHiRT trustee Jon Small and brother of trustees Jamie and Adam, Dave Hardgrave, […]

July 17, 2015