Thursday, July 30, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:


Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.


Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.


Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.


We’ve had a great response to our SHHiRT Challenge, with runners of all abilities and ages signing up to take part. If you’ve been thinking of signing up, don’t leave it until the last minute! Book your place now to be sure of taking part, strike it off your to-do list, and start your training!

July 17, 2015


Screen Shot 2015-07-17 at 06.59.00

…but you’ll like it! Friends of SHHiRT, KillQuick Collective, are playing a rare and exclusive live gig at Scream Lounge, Croydon on Saturday 19th September evening. Playing a hedonistic blend of eclectic genres, they provide a unique sensory experience. The band features SHHiRT trustee Jon Small and brother of trustees Jamie and Adam, Dave Hardgrave, […]

July 17, 2015


lucas and caitlin

We’re very proud to be hosting our first exclusive race event – the “Get the T-SHHiRT Clapham Common Challenge”! It’s a fun family race day, featuring a 5k race, 10k race, and 2k fun run for the kids. We welcome all standards, ages, shapes and sizes; so whether you’re in it to win it, or […]

June 5, 2015


ball 11

We are pleased to announced that the 5th annual SHHiRT Golf Day is confirmed for Thursday 27th August 2015, so dust off your clubs and get practising for another fun packed day of swinging, putting and fundraising! As anyone who has played before will testify, it’s a great day mixing some serious fundraising with a celeb-packed […]

June 5, 2015


Dan thumb

Good luck to the brilliant Dan Berry who is going to be scorching up the pavements of London this weekend. Dan (pictured with our head of trustees Jamie at the Brighton marathon) has been a long-term supporter of SHHiRT and we are very proud and thrilled that he will be sporting our colours in the world-famous […]

April 24, 2015