Friday, July 3, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:


Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.


Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.


Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.


lucas and caitlin

We’re very proud to be hosting our first exclusive race event – the “Get the T-SHHiRT Clapham Common Challenge”! It’s a fun family race day, featuring a 5k race, 10k race, and 2k fun run for the kids. We welcome all standards, ages, shapes and sizes; so whether you’re in it to win it, or […]

June 5, 2015


ball 11

We are pleased to announced that the 5th annual SHHiRT Golf Day is confirmed for Thursday 27th August 2015, so dust off your clubs and get practising for another fun packed day of swinging, putting and fundraising! As anyone who has played before will testify, it’s a great day mixing some serious fundraising with a celeb-packed […]

June 5, 2015


Dan thumb

Good luck to the brilliant Dan Berry who is going to be scorching up the pavements of London this weekend. Dan (pictured with our head of trustees Jamie at the Brighton marathon) has been a long-term supporter of SHHiRT and we are very proud and thrilled that he will be sporting our colours in the world-famous […]

April 24, 2015



Best of luck to our fantastic Brighton marathon runners, Scott Rowson (left) and Brian Kerr! The boys are taking on the 26.2 miles around the south coast this Sunday in aid of SHHiRT – and we’re hugely grateful for their efforts. We will be there to cheer them on every step of the way (not […]

April 10, 2015



Here’s our latest update from around SHHiRT – featuring our annual quiz, last call for the Brighton marathon, a fashion show and a special birthday. Enjoy! Let’s get quizzical! It’s the ever-popular SHHiRT Quiz on Saturday 7th March at Purley Bury Tennis Club – and we want you there. It costs a bargain £10 a ticket, […]

February 9, 2015