Wednesday, March 4, 2015

Our goals to change the lives of those touched by Harlequins Ichthyosis:

1

Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis – improving the mortality prospects for babies born with the condition, and quality of life for those living with it.

2

Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.

3

Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.

 

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Here’s our latest update from around SHHiRT – featuring our annual quiz, last call for the Brighton marathon, a fashion show and a special birthday. Enjoy! Let’s get quizzical! It’s the ever-popular SHHiRT Quiz on Saturday 7th March at Purley Bury Tennis Club – and we want you there. It costs a bargain £10 a ticket, […]

February 9, 2015