Friday, July 11, 2014

Our goals to change the lives of those touched by Harlequins Ichthyosis:


Research into cause & prevention

We generate funds for research into Harlequin Ichthyosis - improving the mortality prospects for babies born with the condition, and quality of life for those living with it.


Providing support to those affected

We help to connect individuals and families affected by Harlequin Ichthyosis, and try to make a difference to their lives.


Raise awareness & inform the public

We raise awareness of Harlequin Ichthyosis amongst the wider public, providing information on the effects and impact of the condition.



Our next sporting challenge is the London Triathlon, which takes place over 2-3 August. Places cost £100 with a fundraising commitment of £500. But you don’t need to be an all-round athlete to take part in a triathlon – in fact, you can be a complete one-trick pony if you team up with a couple of […]

June 8, 2014


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Our James-Bond themed summer party is fast approaching! On Saturday 12th July we will be donning our best glad-rags, and we’d love you to join us! Places are filling up, so don’t miss out – email to book your tickets.

June 8, 2014


SHHiRT supporters get into the spirit of the marathon

We started the month with a bang, as our biggest ever SHHiRT squad took part in last weekend’s Brighton Marathon. Our runners braved wet and windy conditions to complete 26.2 miles on the south coast. The roll of honour is: Adam Hardgrave (5.50) Chris White (3.20) Faye Dance (6.01) Jamie Hardgrave (5.31) Mike Day (4.21) […]

April 11, 2014


Faye gets set for Brighton!

On Sunday 6 April we will have nine runners participating in the Brighton Marathon – our biggest “SHHiRT Squad” yet! All the months of training and hard work will come to a head as our team take on the 26.2 mile south coast race, cheered on every step of the way by friends, family, and […]

March 30, 2014


We’re well into 2014 so wanted to share an update on what we – and you – have been up to so far. A fully-filled February It’s been a busy month for SHHiRT – both for our supporters, and the SHHiRT team. Starting with our super supporters, we want to say a massive thank you […]

March 9, 2014